tirsdag den 12. oktober 2010

Intet nyt er godt nyt

Min blog har været stille i en uge. Jeg har nemlig været på kursus i egenomsorg.

Type 1 og 2
Jeg har jo fået diabetes type 1, som ca. 25.000 andre danskere har. Der findes også type 2 diabetes eller gammelmandssukkersyge. Forskellen på de to typer er at type 1 er en autoimmun sygdom, dvs en sygdom hvor kroppens eget immunforsvar går løs på egne organer, i dette tilfælde bugspytkirtlen.
Type 2 diabetes, som 500.000-700.000 danskere har, er livsstilsbetinget og er det som følger med usund levevis og overvægt.


Der er altså ikke så mange som har type 1 og sygdommen rammer hovedsageligt børn og unge. Så da jeg blev ramt følte jeg mig både forkert og alene. For jeg kendte ikke andre med sygdommen. Jeg kendte faktisk så lidt til diabetes, at jeg slet ikke vidste hvad forskellen på de to typer var.

Ekspert i egen sygdom
I 6 dage er jeg blevet bombarderet med viden med landets førende eksperter. Endokrinologer, sygeplejerske, diætist, psykoterapeut, øjenlæge, neurolog, stamcelleforsker m.fl.
Samtidig var jeg sammen med 25 andre kursister som alle var ramt af nøjagtig samme sygdom. Det var sådan en lettelse! Ingen der undrer sig når man er træt, spiser midt i noget undervisning eller samtale, bipper og dutter fra livsnødvendige apparater og hiver en mavedelle frem ved spisebordet og stikker sig med sprøjten.
I sådan et forum kan man ikke undgå at lære en helt masse. Fint nok at der findes behandlere som ved en helt masse, men de vil aldrig kunne læse sig til hvordan det præcis føles at være i vores sko. Så nu har jeg endelig oplevet at føle mig forstået, sådan rigtigt!

At finde frem til det positive
Egentlig er jeg stadig lidt tom for ord efter alt det der er sket. Det har bare været sådan en kæmpe lettelse at være i dette forum. Så megen kærlighed, interesse og omsorg samlet på et sted.
Som psykoterapeuten snakkede om, så er diabetes en af de eneste kroniske sygdomme, som man ikke kan se/let kan skjules. Det giver en indsigt og særlig empatisk evne. Man dømmer ikke andre, for man ved at der nok er en forklaring på at folk sommetider træder ved siden af. Med vores sygdom er det sådan at vi kan få alt for lavt blodsukker og nogle bliver vrøvlede, andre aggressive. I den tilstand er vi ude af stand til at klare os selv og er afhængige af, at nogen kan træde til. Så kan det blive fatalt, hvis folk bare går forbi og tænker: "fulde idiot".

Mit selvværd har fået et ret stort skub opad og jeg føler mig ikke så meget som et offer for sygdom, som jeg gjorde før. Jeg kan mærke jeg har fået lyst og kampgejst tilbage. Jeg har fået lyst til at kæmpe for at få det så godt som muligt -for livet er det værd. Jeg er det værd!

Medicinske betegnelser som jeg på kursus har fået helt tjek på. Her i en forskønnet udgave.

12 kommentarer:

  1. Dejligt at du nu ikke føler dig alene.
    Du får lige et par positive tanker med på vejen, for ja, selvfølgelig er du da det værd.
    Mette

    SvarSlet
  2. Dejligt at du nu ikke føler dig alene.
    Du får lige et par positive tanker med på vejen, for ja, selvfølgelig er du da det værd.
    Mette

    SvarSlet
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